Sometimes, as a Special Mama, it’s very easy to feel invisible. Sometimes, it’s like you’ve lost your identity and the person you were before life changed forever. You may now never get the opportunity to tut in scorn (but inwardly smile, because you know you’ve still “got it”) at builders or tradesmen in vans who … More Hey Special Needs Mom, I See You
It started in my basement. Each stuffed animal would sit on top of the ping pong table waiting to find out if they passed the spelling quiz. Beary could never spell “because” correctly and would have to stay after school to get some more help. Words were never his thing. Luckily for him, they were … More When You Love Language But Your Child May Never Speak
Shortly after Elsie was diagnosed with cystinosis, I was lying awake in bed when an idea popped into my head. “Maybe I should start a blog.” I felt scared, alone and broken, and hated the idea of anyone else feeling this way. I had so many questions and unknowns in Elsie’s future and I knew that … More Advice for New Special Needs Parents
When I think about people who embody the definition of the word inspiration, the names Helen Keller, Ray Charles, Stevie Wonder, and others who’ve overcome substantial obstacles flash across. I think about those who’ve made profound contributions to society. People like Bill Gates, Albert Einstein, and Steve Jobs. I see the faces of those who have … More As a Special Needs Mom, People Call Me an Inspiration. I Don’t Feel Like One Though.
I stared at the pregnancy test for a long time. I could hardly believe what I saw. In fact, I didn’t believe it, and took two more tests just to be sure. They all read “pregnant.” I’d been longing for a second child, agonizing over it for months. But we struggled with the decision, wondering … More As Long As It’s A Healthy Baby
I couldn’t stop staring at two words on my computer screen: Intellectual Disability. After five years of doctor appointments, tests and more tests, we had several conditions finally diagnosed for our daughter. Our search included two neurologists, two geneticists, pediatricians and development delay specialists that spanned two states. It’d been a long journey to diagnosis … More Accepting the Words Intellectual Disability
I used to be a wallflower. No seriously, ask anybody. I didn’t speak to my mother-in-law for six years, unless she looked directly at me. I didn’t know what to call her. I wasn’t sure how to get her attention. It took having my daughter Abby for me to say “Barbara” and even then I … More Being a Special Needs Mom Has Taught Me What Really Matters; What I Think of Myself