5 Reasons Why Raising a Child with a Medical Condition is Kind of Incredible

When someone learns for the first time that my 4-year-old daughter has a rare disease called cystinosis, their face will usually morph from happy and pleasant into one of concern and pity. While I appreciate their compassion and willingness to express their condolences, sometimes I find myself annoyed by their reaction. Particularly when they don’t … More 5 Reasons Why Raising a Child with a Medical Condition is Kind of Incredible