If you are a parent reading this, or an aunt, uncle, grandparent, cousin, sibling, friend, school teacher, a GP, a nurse, a doctor or even a pediatrician I want you all to come with me on this imaginary trip. It’s not a good trip but a trip some families have to go on. Imagine you … More Imagine Meeting a Doctor Who Listened
Our baby girl arrived on June 18 1998. She was tiny; 5lbs 6.5oz and 18 inches long. She was the cutest baby in the nursery. She had a small round head, the cutest cry, beautiful almond shaped eyes, a tiny purple spot on her forehead, a small bald spot on the back of her head, … More Cri du Chat Syndrome Didn’t Define My Daughter, It Made us Stronger
I feel like people toss around the idea of bravery a lot when they are talking about children with medical challenges. As I am laying here in a hospital crib, at four am, pinned under a sleeping Ezzy, unable to sleep myself….this is what I find myself thinking about: What does it mean to call … More What Does it Mean to Call My Daughter Brave?